Chemo “#4” Visit and Cancer Cup Song

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Here’s a Cup-Song that my daughters and I  might possibly try to adapt and personalize some time:


John and I just had a marvelous, grand ole’ time with his Step Dad and Mom, who so generously and lovingly  shared a wonderfully fun, restful respite at a resort with us, beginning Sunday and ending with my appointment at the oncology department on Wednesday morning on our way home.  I went in for what’s officially considered my 4th round of chemo visit (although #3  was skipped completely because of my blood work and wont be made up as per my oncologist). I guess many patients end up with a course of 9 or 10 Taxol infusions instead of the full 12 because of side effects.


My low white blood count and Absolute Neutrophil Counts went up just a little bit from the week before and are still significantly low.  This makes me very vulnerable to infection and possible complications with a compromised immune system.  Considering how much of a hit my blood work seems to take with each chemo along with the neuropathy issues which tend to be cumulative,  I can not imagine that my white count will be high enough to get chemo next week, but we’ll see.  One piece of good news was that I did not have a reaction to the Herceptin I’ll be getting every three weeks for a year,  like I did with the loading dose three weeks ago, and my neuropathy improved some with the one week break in between chemotherapy.


I am shedding a lot of hair now and expect that I’ll end up with either a very thinned out hair-do or be sporting a completely bald look under hats, scarves, and wigs when I am away from home  like last time.  Head coverings usually got whipped off promptly in the privacy of my  home.  I’ll never forget the wide-eyed, shocked looks on the faces of guests the few times when I forgot to cover up my bald head before opening my front door, ha, ha! Maybe I’ll get brave and sport an “as- is chemo look”  from time to time with a shiny, see-through to the scalp, bright lipstick and big earrings in public,  I dunno.  🙂 Some women really rock that look but I’m pretty sure that’s not “my thing” to do in public but ya never know, I might give it a try.  I know there’s no right or wrong way to do this but it helped me in the past to choose to have fun with it with a variety of head decor and make up and jewelry I usually don’t wear.


I’ve been thinking that all this cancer stuff  kind of feels like being “between a rock and a hard place”.  Seeing as Jesus is my Rock though, that is a very good place to be.  I’ve shared it before, but my favorite poem comes to mind:


“Sometimes on the Rock I tremble

Faint of heart and weak of knee

But the Steadfast Rock of Ages

Never trembles under me.”


But the very hairs of your head are all numbered.

God has numbered the hairs on each and every one of our heads!  I love to remember that He knows all about my blood work, neuropathy, long term lack of sleep,  cancer situation, and everything about everything and He loves me and cares about every detail.

I also love that God is ALWAYS, ALWAYS, ALWAYS up to something good in our lives: always and no matter what!

Thank you for continuing to pray for me and my precious family.  We really appreciate it.




“There’s Always Hope For Things to Get Better”

 Copied and pasted from:


Ann Voskamp

when you’ve got to know that there’s always hope for things to get better in the world

“She’d dropped her voice when she told me that first Sunday of Advent that the kid had tried to kill himself.


That there had been texts, photos of a rope, proof of how it was going to be done.


And then this call to 911.


This was the part that she didn’t have words for.


Her hands flailed a bit, like she was drowning, like her flooding tears were drowning her, and she choked and flailed, reached for words to steady herself, as if she could just find words, she could drag herself up out of the depths.


How do you make words stretch around an entire ocean of ache?


When your heart is detonated on an unassuming morning and this whole dam lets go and you’re swept away in this flood of pain?


She stood there in front of me like a woman underwater, like a woman underwater who kept talking, as if words were coming out, as if I could hear them, but there were no sounds. Only this death gurgle.


There was nothing that seemed right except to look right into her eyes and not look away. Death gurgles can’t be helped up to air by words, by mere, smothering words.


Death gurgles only gasp relief with the gift of presence, by someone taking you close, lifting you with the soundless warmth of themselves.


I reached for her hand. We found our legs and stood. We went for a walk. Yeah, no chocolate therapy. Neither one of us drink. So you do what teetolaters and 40-something women who don’t need anymore calories can actually do – I asked her if she had time to step into the conservatory down by the river.


The butterfly conservatory on the first Sunday of Advent. The first Sunday of Advent when everywhere there is this lighting of the Hope candle. When hope rattled more like a death gurgle in her and the boy was somewhere in the bowels of a pyschiatric ward where they try to wrench you from ropes and bed sheets and your own strangling demons.


Maybe if she saw the lighting and flying, maybe she could believe in things unseen?




I held the conservatory’s door open for her.


It’s what hit you when you first stepped into the glass dome — the lightness of the air in here. Here, for a moment, she could breathe here. The waterfall kept murmuring of things coming from somewhere else. Wings, everywhere wings, lighting and lifting, a thousand wings.


She did put one foot in front of the other. This can be biggest brave.


And what she was feeling were actual facts — the boy had been pummelled. People who should have loved him had abused him of all dignity. Places that should have carried him had mercilessly, mockingly crushed him. Promises that should have helped him up had laughed loud and kicked him in the gut. How busted up can you be before your only future is to bust up everyone else?


How do you sand down the razor shards of a shattered heart and piece them together enough so they don’t go around blithely slashing everyone else? How do you hope unlikely things because you love someone to death?


We stood for a long time and stared at the chrysalises.


Thin sheens hung by threads. It didn’t seem possible – that out of silken threads, wings unfolded wet. But we watched it happen.


There were no words. Simply witnessing. We sat at the waterfall. We waited.




“A blue one….” she said it quiet.


“I need just one photo of a blue morpho butterfly, and then we really have to go.” Yes, the morpho butterfly — whose very name means changed. We all need to believe that things can change.


So we tried.


Like wanna-be hunters on some scam safari, weilding cameras for just one shot, we slunk up quiet to this bloom with its mouth opened like a candy bowl of tempting nectar, we snuck behind that lily and this leaf, and the whole farce was good comic relief, us looking more like bad detectives in a cheap 1970’s rerun. Everywhere morpho butterflies slapped shut their inner blue wings, stared back steely at us with their drab outer brown wings.


Please, Lord – just give her one open spread of blue wings. For crying prayers out loud, just a bit of hope to take out of here.


We waited. Did what the wisest have always done: Waited and Hoped. And the morpho butterfly just outwaited us.


Flitted blue now and then, always a flash on the periphery, glanced us with possibility, but wherever we spun, it locked us out with a determined bland brown.



We’re standing there with our waiting cameras and our frames of brown, without a hint of blue —


and I look over at my friend and you can read it like a headline, her flat resignation.


Like she’s struggling to breathe again.


A walk through a butterfly conservatory that was supposed to be this metaphor of hope — is fast turning into this mockery of hope.


Sometimes believing in a miracle feels like living in a mirage. You can feel like a fool, walking around with your pitcher. Waiting for a picture.

Really, God? Really?


“My battery is about dead…” She looks down at her camera. She doesn’t have to tell me that there’s a lot more deadened than that. “Let’s go.”


I turn my camera off, nod. What else do you say to a woman who just can’t stand the teasing evasiveness of hope mocking her one moment longer?


So I duck under some leaves across the conservatory walkway and a conservatory park ranger brushes past me and I look for the door – and the park ranger whispers: S.T.O.P.


“One of the morphos has landed on you. Right on you.”


I don’t move. I turn slow to look for his stubborn outer brown wings.


“And he’s wide open blue.” The park ranger kneels. “You don’t understand — they don’t do this. They’re the ones that don’t land on people. And they about never rest in their wide open blue.”


My friend nods, she knows, mouth wide open, raising her camera, she knows.


She clicks, snaps, shoots, takes more. More people stop, take more photos. The park ranger asks for my camera, takes a few more. “You don’t understand,” he whispers… it’s about impossible to get photos of them with their wings in their open blue.”


I nod – whisper it over the indigo wings open there on my shoulder: “And then sometimes — the impossible unfolds into the possible.



I look over at my friend… who is brimming. Spilling.


Tears are never a sign of weakness. Tears are always the sign of an open heart.


And I mouth it to her, like it’s more certain without any sound, like I don’t want it to slip away from either one of us:




It’s the first Sunday of Advent. Hope candles are lit everywhere. God is giving you Hope. 


Hope — for you. 


For you with the kid that seems to have no way through, for you with the heart beaten right down, for you with so much black in front of you that you can’t find the light, for you who can’t see tomorrow being any glint bit better than today —


Hope lights on you and Hope’s just up ahead nodding that it’s going to be okay — you will be okay.


My friend, she’s nodding at me. Nodding at this wide open blue butterfly on my shoulder. And her face is right wet, an ocean of ache running like a waterfall of hope now, right off the edge of her chin, and she chokes it out — “How could we ever not believe? How can we ever not hope in impossible things now?”


The butterfly refuses to close its wings — refuses to do anything but remain open. 


And I nod yes, yes because it’s a paradox: the way to hold fast to what you’re hoping for, is to hold that Hope with openness.


With openness, hold fast to that Hope —  for if the Hope ebbs away, you become a broken wing who cannot fly.


No matter how we’re hurting — it’s only when we lose hope that the real horror happens.


She’s shoulder wracked, wet, heaving with the relief of it and I pull her close and pray like we’ve been touched, like He’s come near the very first Sunday of Advent and Hope candles blazing everywhere unwavering and there’s a boy who can believe — and live —  and there’s a weary woman who’s rising and there’s Christ who comes to give us the gift every one wants more than anything — a future and a hope.


“25 minutes.” She whispers. “That morph butterfly has sat on your shoulder for almost 25 minutes.”


And I nod. Of course.


The very least you can do with your life is welcome in Hope. And He has a name.


And the very best you can do with your life is build a life with Hope.


Live right under a roof of Hope.


Sure, hope feels risky. Sure, hope feels like you’re under a fragile roof that could implode, a roof that could get ripped off and leave you staring up at the sky.


But then you’d just stand and look and trust you were meant to see stars.


You’d just stand and look and trust that you were meant to soar. 


The morpho butterfly  rests with these open wings on me.


And we rest with these open hands in Him.


And we walk on through, the winged thing never leaving, never leaving, never closing, and it’s a bit like what Dickinson said, but different, and it all still clings to me–


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“Hope is the thing with wings

That lands at the end of you

And shows you how to open to possibilities

So you never close again.”